Yesterday there was the formal launch of a new, patient-centric group of prostate cancer education, advocacy, and support organizations named PCPC3 . Among other concerns, this group was designed to respond to the concern expressed by many prostate cancer survivors that there is a lack of coordination and collaboration between the major prostate cancer survivor organizations.
What is PCPC3?
It is a patient-centered prostate cancer collaborative coalition of the major prostate cancer survivor organizations in the United States. Initial plans were conceived and discussed by a small group of the major patient education and advocacy organizations attending the most recent Annual Meeting of the AUA.
The result of this initial meeting was a follow up meeting of these organizations in Chicago at the annual meeting of the American Society of Clinical Oncology (ASCO).
Since the ASCO meeting there has been a number of additional conversations among the organizations which culminated in the formation of PCPC3. It is a group of independent, not-for-profit, patient-centric prostate cancer organizations whose primary, shared goals include the education and support of men diagnosed with prostate cancer, their family members, caregivers, and all men at risk for prostate cancer.
The founding members of PCPC3 are:
- National Alliance of State Prostate Cancer Coalitions (NASPCC)
- Patient Advocates for Advanced Cancer Treatments (PAACT)
- Prostate Cancer International (PCaI)
- Prostate Conditions Education Council (PCEC)
- Prostate Health Education Network (PHEN)
- Us TOO International
The members of PCPC3 are dedicated to
- Ensuring that all adult males and their families understand and are aware of their risk for diagnosis with prostate cancer
- Providing information, education, and support for men who are diagnosed with prostate cancer — and for their care-givers and family members
- Advocating for and educating patients about opportunities for high-quality diagnosis, management, and treatment of prostate cancer and its consequences by primary care and specialist clinicians of all types
- Advocating for advances in the diagnosis and management of prostate cancer over time
- Eliminating prostate cancer as a significant clinical risk factor to the greatest extent possible and
- To working together, in collaboration, toward the achievement of this mission.
For additional information, please see the PCPC3 web site at www.pcpc3.org.