End-Of-Life

The Well Reviewed Guide to Advanced Prostate Cancer (A Survivor Perspective) Has Been Updated and is Now Available for a free Download

Somehow I have been negligent and not let people know that I have written and posted a major update of my “Guide to Advanced Prostate Cancer.” As in the past, it is available as a free download from the Malecare web site. Helping me to update the book was prostate cancer survivor Craig Pynn and my own caretaker, Wendy Lebowitz. Anyone reading the first edition will be surprised when you see how many changes and updates this edition has included. It now has a very extensive conversation about living in the world as a cancer survivor as well as more [...]

Caregiving -It Isn’t Easy

Becoming a full time 24/7 caregiver for someone with any chronic illness, including advanced prostate cancer is overwhelming.  Most caregivers find that they  stop their own personal activities, including those that give them personal pleasure.   Caregiving means subverting personal needs in favor of the needs of the patient. This situation often leads to the caregiver having feelings of resentment and then shame and guilt for having those feelings. A common caregiver response is that the patient's needs far out trump the caregivers, so a caregiver feeling of being trapped or sad becomes unforgiving and selfish. Caregivers often do not [...]

It’s Only About Who You Love and Who Loves You

Suzanne Somers is a well known actress and also a well known cancer survivor. Her book, "Knockout: Interviews with Doctors Who are Curing Cancer and How to Prevent Getting it in the First Place" has made a very positive impression on many people, including many doctors who have strongly objected to her writings. I want to share with you a quote from the book, a quote that I believe captures a very simple, yet significant understanding gained from a hospital bed of what life is meant to be about: "My family around me, Barry calling, Alan never leaving my side, [...]

By | October 2nd, 2013|End-Of-Life, General Information, Quality of Life, Uncategorized|0 Comments

A Survival Advantage – Is It Worth It?

http://youtu.be/uZSIfPlEDys Text of the video for those individuals with a slow internet connection: A Survival Advantage – Is It Worth It and What Does It Mean? My name is Joel Nowak and I am the Director of Advocacy and Advanced Prostate Cancer Programs for Malecare. In this video I am going to discuss what the meaning of the term Survival Advantage is when a drug is approved for use by the FDA. In prostate cancer the survival advantage is measured in months and many individuals don’t really understand the potential power this number has for an individual. In order to [...]

By | March 12th, 2013|Early/Expanded Access Programs, End-Of-Life|1 Comment
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