Guest Bloggers

/Guest Bloggers

Randy Sheffield Shares An Important Warning About ONJ

Randy Sheffield, a member of the Malecare Advanced Prostate Cancer Online support group recently has had his fight with advanced prostate cancer made even more complex when he developed Osteonecrosis of the jaw (ONJ). ONJ is an uncommon but terrible side effect of taking bisphosphonates. Randy wrote a warning to all the members of the group, a warning that bears repeating to all the readers of the blog: “I was diagnosed September 2004 with prostate cancer and initially treated with brachytherapy. This was followed overtime with Lupron, Casodex, External Beam Radiation, Quadramet, Zoladex, Ketoconazole and Hydrocortisone, Provenge, Taxotere, Zytiga, Xtandi, [...]

A Beautiful Caregiver Tells Her Real Story In Dealing with Her Husband’s Prostate Cancer

As I have said before, the true unsung heroes of our fight against advanced prostate cancer are our caretakers. Our caretakers are our saints, they help educate us, they advocate for us, they shield us and they make us as complete as we can possibly be. They improve our lives and help us get through the day with love and enjoyment. Sadly, they do this for us at great personal costs. A caretaker posted the following on the advanced prostate cancer online support group. I thought that it was important for all of us, both prostate cancer survivor and caretaker. [...]

A Real Life Experience Using A C-11 Choline Scan To Combat A Prostate Cancer Recurrence

In response to the post I wrote about Choline C-11 on December 11, 2013 Choline C-11 A Second Shot To Halt the Cancer After Primary Treatment Failure one of our group members contact me and shared that he was scheduled to have a similar scan. I asked if he would be willing to share his experience. The following is his discussion: Greetings to my brothers and sisters, My name is Brian and, like most of you, I have prostate cancer. On December 26th, I read Joel's daily blog on Choline C-11 PET Scan. I thought the timing with that post [...]

A Personal Story with A Solution to An Uncommon Side Effect From Xtandi

I was lucky enough to have a consultant here in the UK who was able to get me Enzalutamide (Xyandi) on a compassionate use basis. It worked well for some six months for which I am very thankful but I suffered from an unusual, though listed, side effect. Apart from fatigue, which seems to be a common side effect for many strong trial drugs, I also experienced quite alarming daytime hallucinations and nightmares on a regular basis. The hallucinations would consist of me having conversations with absent people. I only realized this when family and friends wondered whom the heck [...]