Our Caretakers

//Our Caretakers

The Well Reviewed Guide to Advanced Prostate Cancer (A Survivor Perspective) Has Been Updated and is Now Available for a free Download

Somehow I have been negligent and not let people know that I have written and posted a major update of my “Guide to Advanced Prostate Cancer.” As in the past, it is available as a free download from the Malecare web site. Helping me to update the book was prostate cancer survivor Craig Pynn and my own caretaker, Wendy Lebowitz. Anyone reading the first edition will be surprised when you see how many changes and updates this edition has included. It now has a very extensive conversation about living in the world as a cancer survivor as well as more [...]

A Beautiful Caregiver Tells Her Real Story In Dealing with Her Husband’s Prostate Cancer

As I have said before, the true unsung heroes of our fight against advanced prostate cancer are our caretakers. Our caretakers are our saints, they help educate us, they advocate for us, they shield us and they make us as complete as we can possibly be. They improve our lives and help us get through the day with love and enjoyment. Sadly, they do this for us at great personal costs. A caretaker posted the following on the advanced prostate cancer online support group. I thought that it was important for all of us, both prostate cancer survivor and caretaker. [...]

Caregiving -It Isn’t Easy

Becoming a full time 24/7 caregiver for someone with any chronic illness, including advanced prostate cancer is overwhelming.  Most caregivers find that they  stop their own personal activities, including those that give them personal pleasure.   Caregiving means subverting personal needs in favor of the needs of the patient. This situation often leads to the caregiver having feelings of resentment and then shame and guilt for having those feelings. A common caregiver response is that the patient's needs far out trump the caregivers, so a caregiver feeling of being trapped or sad becomes unforgiving and selfish. Caregivers often do not [...]

WHAT – Fired By Your Doctor! Sounds Like You Are Lucky

I want to share a post I made today on the advanced prostate cancer online support group (http://health.groups.yahoo.com/subscribe/advancedprostatecancer).  It was in response to an ongoing thread with a spouse (caregiver) who was fired by her husband's doctor by having his nurse call them.  She was guilty of asking questions, relevant and important ones, but the doctor was not interested in feeling that his judgment was being called into question.  She reported that she was angry, but also feeling that perhaps she had failed her husband.   The following was my response to her concern:   First, I want to say what [...]