Personal Experiences

//Personal Experiences

Guest Post – Living Your Life with Stage IV Prostate Cancer

The following is a guest post from a participant of the Malecare Health Unlocked Advanced Prostate Cancer Online Support Group. I would like to share my ideas for coping with stage 4 prostate cancer. Hoping one or two points may encourage others to think about how they may find a better way cope with their stage 4 disease. I boarded the Prostate Cancer train in Aug 2009 at age 71. Through out the trip this train has been engineered the joint effort of the VA, Asheville, NC and Dr James Polascik, Duke University Cancer Center. Stopping off along the way, [...]

Describing My Experience Being Diagnosed With A Fifth Cancer – A Video To Watch

I attend the American Society of Clinical Oncology (ASCO) meeting in Chicago in May.  As usual, it was exciting and it provides me with a fantastic opportunity to catch up with the current research in advanced prostate cancer.  It also gives me an opportunity to meet with and have private conversations with some of the greatest researchers in prostate cancer. In addition I am occasionally asked to share a survivor perspective to the meeting.  Over the last few meetings I have also made some videos with Patient Power.  At this last meeting I made a video about my experience having [...]

An Opinion Piece – The Time Has Come To Actually Manage The Adverse Effects of Androgen Deprivation Therapy (ADT)

Starting androgen deprivation therapy (ADT) to treat advanced prostate cancer is usually the start of a long treatment period that will continue for many years, actually until you die. Since our goal in cancer treatment is to make cancer a chronic illness and since prostate cancer does progress for most men in a relatively slow process it is time that we stop ignoring the sometimes horrendous side effects of ADT. The time has come for us to acknowledge these side effects and start to find ways to help mitigate them. Currently, doctors acknowledge that these side effects exist, but they [...]

The Well Reviewed Guide to Advanced Prostate Cancer (A Survivor Perspective) Has Been Updated and is Now Available for a free Download

Somehow I have been negligent and not let people know that I have written and posted a major update of my “Guide to Advanced Prostate Cancer.” As in the past, it is available as a free download from the Malecare web site. Helping me to update the book was prostate cancer survivor Craig Pynn and my own caretaker, Wendy Lebowitz. Anyone reading the first edition will be surprised when you see how many changes and updates this edition has included. It now has a very extensive conversation about living in the world as a cancer survivor as well as more [...]